Tuesday, April 30, 2013

Update

4/30/12

Seems as though the HW didn't take. Going to get a new supply in a couple of weeks. Trial and error...

:)

Day 1: Post Inoculation

4/30/13
Hello Friends!

Last night I finally started the Hookworm and whipworm therapy! I was nervous but also excited! The whipworm was successful, but the hookworm might not have worked. It doesn't last very long in the refrigerator, and it spent three days in there, which may have been too much. If that is the case I will just try it again.

So far, I haven't noticed any symptoms which are sometimes quite strong in the first two weeks following inoculation. I actually feel great today, aside from being tired from life and not getting enough sleep...

I'll keep you posted on the hookworm success and how the rest of it goes.

Thanks for following!

Amy

Tuesday, April 23, 2013

Welcome to the blog!

Hello!

Thanks for reading this blog on my experiences with Helminthic Therapy, an alternative treatment for many autoimmune disorders in our society today. My purpose for starting this blog is to update and educate friends, family, and other interested parties.

Background:

My name is Amy, I am 27 years old and I have had Crohn's Disease, a gastrointestinal autoimmune disorder, since the age of 13. I live in Burlington Vermont, with my boyfriend Bill and I'm currently in graduate school for my Master's in Social Work. I am an avid runner, and enjoy spending time with my friends and family.

Upon receiving this diagnosis, my doctor prescribed almost every medication that was available to Western medicine for the treatment of Crohn's, but I was unable to keep my symptoms under control. I was on a high dose of prednisone, a steroid with terrible side effects such as insomnia, acne, bloating, and irritability. I was also taking antibiotics with equally as horrible side effects, as well as a couple drugs which suppress one's immune system. After months on these horrible drugs, and no improvement, my parents and I both looked to alternatives.

I started the Specific Carbohydrate Diet, which put me into remission for nearly two years. The diet is something I still believe in, and adhere to as much as is humanly possible. Unfortunately it requires very strict adherence- and it has been difficult for me to continue on it 100% which means more symptoms.

In the past 5 years or so, I experimented with Pharma again- and very recently considered starting one of the biological injection drugs, in spite of the high risk for a variety of side effects. I have always been weary of the drugs available to people with Crohn's Disease, and felt that starting one of these drugs would be untrue to my beliefs. I also feared living with some horrendous side effects, including the looming possibility of developing cancer!

One day, a few months ago, my boyfriend started reading more about helminthic therapy, and brought it up as a possibility. I had heard about this before on an NPR program covering the topic of parasites, and while I was intrigued by it before, I never considered it as a viable option. I was also deterred by it's lack of availability of it in the United States, and the whole idea of actually infecting myself with a parasite! In spite of my reservations, I started doing some extensive research, and found that actually starting the therapy would be much more feasible than I ever imagined.

With the help of my provider, who answered my MILLION questions, I started the therapy, and feel optimistic that it may provide some relief from my disease in the future.

If you have any questions- please ask!

Thanks for reading,
Amy