Saturday, December 28, 2013

Ups and Downs and Holidays

Dec. 28, 2013

I expected many more ups and downs with this last inoculation, and the past week I have experienced some downs. I have been extremely exhausted but am not doing anything to exhaust myself, and am experiencing more of the old Crohn's like symptoms, especially pain, bloating and diarrhea. Once again, this may be my actual disease, or side effects associated with the HW or a nice combination of both. Around the holidays we all tend to binge on food a little bit, and while most people are concerned about gaining weight, I worry more about what this will do to my digestive system and usually it wreaks havoc.

In any event, I'm feeling slightly better today, and hope to continue to improve. I am also looking forward to getting my next WW dose. There is a new dosing regiment for the whipworm, where you take it more frequently in smaller doses. I think there is a lot of promise with this schedule. I'll try and post something at the end of January. Happy New Year!

-Amy


Sunday, December 8, 2013

50 Hookworm, Big Rash, Feeling Good

12/8/2013

I am cautiously excited about my most recent hookworm dose as the past couple of days, gut wise, I have felt pretty good! I inoculated on Tuesday evening, felt the itch immediately and have a very intense rash (these are all good things.)



I have had less urgency going to the bathroom and my stomach has felt pretty good most mornings (which is rare.) I also seem to have more energy and my sense of smell for some reason is improved (not that it was bad before but now it is heightened)

As I said, I am cautiously excited because I want to keep my hopes in check, but feel like this may be the start of some more noticeable improvement

I was thinking the other day that while I haven't seen really obvious changes, there have been smaller less noticeable improvements that have sort of snuck up on me such as: 1) The fact that I haven't needed to take prednisone since early August (and was taking it most of the summer.) 2) I have slightly less urgency in the mornings, and 3) I am able to run regularly with few problems. While I am hoping to eventually feel a lot better than I feel now, I should take the time to notice and appreciate these smaller signs of improvement because they still count.

Thanks for reading!